Dmitry Medvedev asked to provide medical care
The Prime Minister spoke about the problems of Russian patients.
Analgesia in full in Russia only get 26 thousand patients from 200 thousand in need in the regions not developed routing (referral) patients who have a suspected cancer, children with disabilities have difficulties with access to inclusive education and health resort treatment, and after 18 years — problems with rehabilitation services and employment. This was told Prime Minister Dmitry Medvedev, the members of the Council on guardianship in the social sphere. The Prime Minister acknowledged that there are problems that Russia “does not solved.”
The Prime Minister met Friday with members of the Council under the government of the Russian Federation on issues of guardianship in the social sphere (headed by Deputy Prime Minister Olga Golodets). It was planned to sum up results of five years of work of the Council, while Mr Medvedev told about the problems, the solution of which is delayed or does not found.
So, a member of the Board Elena Klochko drew his attention to the problem of inclusive education for children with disabilities and children with disabilities in Russian regions:
“We get a massive (negative.— “B”) feedback from parents. We conducted a survey in 74 regions on the topic of inclusive education — the right to education and special education provisions are provided bad.”
She also noted that these children are experiencing problems with your Spa treatment:
“We have repeatedly asked to consider the possibility to gradually adapt health organizations to the needs of children with disabilities”. According to her, Spa treatment and rehabilitation is not available to citizens with cerebral palsy (CP) aged over 18 years: “cerebral palsy after 18 years not going away, and we have fled this category of indications for SANATORNO-resort treatment. We have a petition signed by 27 thousand parents, with a request to resolve this issue.”
Ms. Klochko has also indicated that in Russia, early detection of autism spectrum disorders (ASD) in children is ineffective:
“We miss those children identified disorder only three to five years. We need to strengthen the Institute of early psychiatry, because, according to our estimates, the number of identified children with ASD significantly undervalued”. She also has noticed that in Russia the psycho-neurological boarding schools for adults and for children are “overly medical focus”, but are social institutions that are designed according to the law on social services to provide social services: “Medicine must yield to the trend when people must not only be treated and monitored, how to obtain compensation to (your situation.— “B”) and live a full life.”
“I don’t mind generally, and in terms of access to, a broad understanding of inclusion, sanatorium treatment, — said Mr. Medvedev.— The problem of care and employment (of people with disabilities.— “B”) who has reached 18 years of age, let’s face it, in our country, not in any way solved. If with children we understand how to do this theme — no. It need to pull in legal, and in the actual field, to think about what to do next, including on issues relating to cerebral palsy, and any diseases that persist among people with disabilities on reaching 18 years of age.”
He also noted that he could not be called “outstanding” score on work in the field of psycho-neurological boarding schools in Russia:
“In this area there is indeed too much regulation, inherited from the Soviet time. What elements need to be addressed, we must also determine”.
Council member Peter Rodionov has noticed that in July 2016 the Ministry of health approved the terms of diagnosis and start of treatment (the diagnosis must be determined within 21 days from the time of suspicion of cancer, treatment should start within 10-15 days after diagnosis). “According to Roszdravnadzor, in 70-80% of districts, these changes were made in regional legislation, — he said.— However, to ensure that the deadlines were respected, it is necessary to optimize the routing of patients. Today, in many regions, the route to diagnosis is a complex and intricate way, involving a lot of unjustified advice and duplicating research.”
The founder of the hospice charity Fund “Vera”, a Board member of Nuta Federmesser told the Prime Minister that in Russia the need for palliative care (help the terminally ill) is about 1.3 million a year, and get it to around 800 thousand
While in need of pain relief of about 200 thousand, but you get it in the desired volume of only 26 thousand. According to her, the current legislation for the provision of medicines, particularly in relation to opioid drugs, “will enable us to provide patients the necessary forms of pain relief in 2023”: “We would like to have changed the requirements for registration of pharmaceuticals. When a person dies is not numb, in my opinion, this is tantamount to torture and violation of human rights”. Mrs. Federmesser recalled that Russia adopted the “road map” for pain management, however, there are problems with the provision of essential drugs in regions: “In the country subjects a huge sovereignty in the field of healthcare. And when the CDC says we have this (legislative framework.— “B”), and then they (regions.— “B”) themselves, it means that the regions have the right not to do. And palliative patients profile die, they have no strength to complain.”
“A positive decision on the timing and diagnosis of cancer — that in itself is very, very good, — said Dmitry Medvedev.— There is a legal model, and the patient already has the right to demand the provision of services. It will be all to discipline”. The subject with pain he described as “difficult”: “It is connected including with the decriminalization of certain known elements of the offense (doctors are afraid to prescribe painkillers, fearing prosecution for drug trafficking.— “Kommersant”). We let this topic continue. I could not agree more that the presence of such criminal part was always afraid of doctors, because any action can be construed as forming part of the crime”. Mr Medvedev noted that “fair”, had “no answer to this question.” “I would ask you on this subject to continue the work,” he said to the Council members.